“OUR PURPOSE IN LIFE IS TO FIND A CURE FOR SANFILIPPO SYNDROME AND SAVE BELLE. WE WILL NEVER LOSE HOPE.”
- The Barris Family
When we wish upon a star, we always wish for a cure.
Our sweet princess Belle is fighting for her life and needs a cure desperately to stop the progression of a rare genetic disease.
In December of 2019, our world changed forever, our youngest daughter was diagnosed with MPS IIIA (Sanfilippo Syndrome). Belle lacks an enzyme that helps dispose of cellular waste. The cells in her brain and body are accumulating with heparan sulfate and she is losing her abilities one by one. We need a cure to save her life!
Meet our Family
Our 5-year-old daughter Belle gives the best hugs. She loves to sing and dance, and her giggles and smile light up our entire world.
In 2019, Belle was diagnosed with Sanfilippo Syndrome, a neurodegenerative disease that is like Alzheimer’s in children. She will lose all the skills she has gained in her short life, suffer seizures and movement disorders, and eventually die in her teens.
Currently, there is no FDA-approved treatment or cure for Sanfilippo Syndrome. But there is hope. Scientists are conducting more research than ever. Your support enables that life-saving research to continue until a cure is discovered.
If you believe you have a way to help our daughter, please feel free to contact Katie at (863) 800-0855 or email katiecbarris@gmail.com
A cure can’t wait. Time is the one thing children with Sanfilippo don’t have. Your donation ensures critical research to find a treatment or cure continues uninterrupted.
Donations to Cure Sanfilippo Foundation, a 501(c)3 nonprofit, are tax deductible.
What is Sanfilippo Syndrome?
Sanfilippo Syndrome (also known as MPS III) is a rare, progressive, and fatal disease affecting 1 in 70,000 children. It is a genetic condition that affects the metabolism of complex molecules and results in severe damage to the entire body, but most significantly to the brain.